Katy Butler's memorable book Knocking on Heaven's Door is almost a textbook for care of the failing elderly patient. From
the dust jacket: "Like so many of us, the Buler always assumed her aging
parents would experience healthy, active retirements before dying peacefully at
home. Then her father suffered a stroke that left him incapable of most
activities of daily living. Her mother was thrust into full-time caregiving,
and Katy Butler became one of the 24 million Americans who help care for their
aging and failing parents.”
Imagine a Medicare ‘Part Q’ for Quality at the End of Life is an article in the NY Times by Katie Butler that appeared by years after the publication of her book. It begins:
"I spent the last Sunday of my father’s life sitting by his
bed on the hospice unit in a small Connecticut hospital. He was dying of
pneumonia, once called “the old man’s friend.” There was a nondenominational
chapel down the hall, and a sheet cake in the kitchen. His hand was warm.
Reassured by the quiet presence of the hospice nurses and feeling the
mysterious quickening of life through his veins, I gave over to being his
daughter and letting him be my father one last time."
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